J's Garden - John S. Howland
Sinonasal Undifferentiated Carcinoma Success Stories
A SNUC Success Story
My name is Margaret Green and I am Catherine's Mother. Thank you for sharing your story with us as it was comforting to know we were not the only ones doing it "tuff". My heart goes out to you and your family as I know exactly what you must have been going through and still going through even to-day. I had never heard of this deadly disease until our Michael was diagnosed with it in November 2008. Like your John his first symptoms were a blocked nose, bleeding from the nasal passage, headaches and numbness in the face. He was going to the Dr who said he had sinus trouble and gave him two lots of antibiotics to try to fix the problem. When this didn't work he was sent to an ear, nose and throat specialist who did a biopsy and sent him to Brisbane for more scans. I still remember clearly the afternoon Michael rang us to say he didn't have good news and that it had spread to behind his eye, his jaw, carotid artery and the base of his skull. My husband then accompanied him back to Brisbane to speak with more doctors. The prognosis was not good and they said there could be no surgery as it was attached to the carotid artery and more or less gave him about 18 months. The Drs said after the Radium, he would be blind in the left eye, deaf in the ear, loose all his teeth, would have massive headaches, and would never work again.

Michael studied Environmental Science at school and was 25 years of age when diagnosed. Like your John he was extremely fit, played footy, went pig hunting and fishing and really enjoyed life. He had a nice little girlfriend whom he met at University however she could not deal with his illness and they parted company last year.

Michael had six weeks of Chemo and Radium at the Wesley Hospital in Brisbane and the Chemo he was given was called "Gemzar". They doctors at this hospital were absolutely marvelous and I'm sure they had the most updated equipment with which to treat Michael.

I meant to mention that Michael worked at a Mining site which produces Lead, Silver and Zinc. He told me he never wore a mask when burning some chemical filters so whether this had something to do with his illness we will never know.

I decided not to take this horrible disease lying down and by divine providence I picked up this book on cancer at a Health Food Shop which was written by a fellow named Barry Thomsen who had cleared himself twice of Melanoma. I read it from front to back and used a lot of the alternative treatments mentioned in the book. {Cheryl I will e-mail you separately  on this as I have had so many requests for the things I have given Michael).

One of the things was a product called Bovine Tracheal Cartilage. By about June Michael started to look and feel better and better. Because we thought he only had a limited time left with us he and his 3 siblings went to a lovely beachside resort north of here for a long week-end. When they came home Catherine said to me "Mum Michael was blowing this thick white rubbery stuff from his nose" and we firmly believe this was the start of the tumor coming away..  This went on for quite some months. My husband Keith went back to Brisbane with him on the 3rd of August for a Pet Scan. When they saw the specialist on the 5th August he said "I have some good news for you two as Michael does not have one bit of cancer left in his body". He said all the tumors were dead.

I'm sure you can imagine our jubilation on hearing this news as to us it was just a miracle as all the Doctors said he was just going to die. I firmly believe it was the work of the wonderful; doctors and all the alternate treatment I had given him. After reading this book I have to say I am no longer a great believer in Chemotherapy and I look on it as a poison. I have heard too many success stories from Barry Thomsen who have followed a lot of the theories in this book.

We still live in fear that this dreadful thing might return but thankfully Michael is a very sensible lad and still follows a sensible diet and I'm still doing the juicing etc.. I think I will be doing it till the day I die.

Nice to meet you via the web Cheryl and to share our stories on this horrible disease.

Catherine (whom is our eldest) and like the Mother Hen of the family gave us a lovely little Granddaughter five weeks ago named Madeleine and so this has given us great joy. We didn't think Michael would be with us to enjoy his two new nieces.

Will forward to you separately the alternate treatments we gave to Michael.

Kind Regards and best wishes

Margaret

Emails related to books and treatments related to above story:
 

Sent: Friday, November 27, 2009 7:30 AM
Subject: Fw: Michaels recovery

To Whom It May Concern,
A product which Michael took was LactoBoost which is a great immune booster. It may be purchased from Natural Health Direct on 1 800 770 771.
I also forgot to mention in the letter that sugar is off the menu as cancer feeds off sugar.
The Cancer book may be purchased from Barry Thomsen direct for $10 plus $2.50 Postage. His phone No, is 32861774.
 
----- Original Message -----
Sent: Wednesday, August 12, 2009 1:56 PM
Subject: Michaels recovery

To Whom It May Concern
The book we purchased which we are certain helped in Michaels recovery is called JOIN OUR ESCAPE FROM DEATH ROW- CANCER JAIL BY BARRY THOMSON. The book may be purchased by phoning 1300 669 156. All correspondence to "C.J. ESCAPES , P.O. BOX 3641, VICTORIA POINT WEST. QLD 4165.
First of all we purchased the slow juicer, juiced beetroot, carrot and wheatgrass which we grew ourselves. Mike had 2 full glasses of this daily to which we added BOVINE TRACHEAL CARTLIDGE - 30 mls as his was a severe case. Keith grows the wheatgrass however it explains in the book how to grow it.

We also purchased the PAPAYA 35 to build up his immune system, He took 6 flaxseed tablets a day, and a product called ERASE which is mentioned in the book to eradicate all parasites. Mike is still on a maintenance dose of that 3 days a week.

Red meat was eliminated from his diet, and he ate mainly free range chicken, fish and vegetables. He drank pure water to which he added CELLFOOD drops which alkaline the body.

We also juiced many different kinds of fruits (skin and all) in the slow juicer to which we added ACAI BERRY POWDER ( a very powerful antioxidant)

If organic fruit and vegetables are unable to be purchased we washed it in water and 1% vinegar.

We are very greatful to the Drs at the Wesley and also to Barry Thomson the author of this great book. I informed Rochways of Michaels recovery and they passed the good news on to Barry. He phoned me and so it was really great to speak to him in person. He believes WHEATGRASS  to be the main fighter.

Kind regards

Margaret.

Another Story From Janet
My husband is an 8 year survivor of this terrible disease.  He was diagnosed eight years ago, two months after the birth of our second daughter.

He had stage four disease, but it had not spread.  His surgery was at Stanford University and after the surgery they told me that they were able to get clean margins all the way around.  After surgery, he went through six weeks of aggressive radiation.  It was horrible.  They never told me that he would die, and they never told me that he would live.

Even though its been eight years, and he has no evidence of disease, I worry about him making it to the ten year mark.  I'm so grateful for every day that we've had.  The dr. told him that if he has cancer again in that area, it would not be a recurrence, it would be a completely different kind of cancer.  The dr. is pretty sure that he won't get it again. - Janet

Below are more details on this success story...
This past Saturday was the 8th anniversary of my husband's surgery.  Wow!

So his only symptom with the cancer really was having a stuffy nose.  He had gone to the dr. who said that he probably had a sinus infection, so he went on about 3 rounds of antibiotics.  Nothing worked.  Then he had an x-ray, and they told him they saw nothing.  It continued to get worse and he complained that it felt like he couldn't breath out of his nose at all.  He had a couple of nose bleeds at work and his PCP referred him to an ENT.  The ENT ordered a CT scan and that's when he found the mass.  He referred him to Stanford.  They did an MRI as well as endoscopy.  They told us that he did have a large mass but it probably wasn't cancer because he didn't fit the profile for the person who gets this kind of cancer (they said that these cancers mostly occur in older Asain men.  My husband was 42 at the time and he is Caucasian).

They did a biopsy and a week later they called to confirm that it was cancer.  It was stage IV but had not metastasized.  It had eaten through the dura and subarachnoid but not the pia matter.

They did a radical resection and they were able to get clear margins all they way around during the surgery.  They said that the fact that they got all the cancer and were able to get clear margins is probably why he survived.  They were very, very aggressive with the surgery.

He did not get chemo, but he did get radiation therapy.  At the time, it was some kind of new radiation that would attack only the area surrounding where the tumor had been.  I remember that they told me that it covered 16 fields but I don't remember any of the other specifics.  It was six weeks, five days a week.

The radiation was terrible.  They covered his head to mid chest.  He lost his hair and it burned his mouth and throat.  He was unable to talk or eat.  He lost so, so much weight.

During the surgery, they severed his olfactory nerve so he can no longer smell anything and his sense of taste is minimal.

The first year after the surgery, he saw the dr. every month.  Now he only has to go once a year.  The dr. told him that if he gets cancer in his head again, it would be a completely new kind of cancer, not a recurrence of what he already had.

I'm not sure if that's all the info you need.  If you need anything else, please let me know!

Janet

SNUC Stories
We want to help others diagnosed with SNUC. If you have questions, a story that you can share with others, or just need someone to talk with regarding this terrible disease, we encourage you to contact us.

SNUC Treatments
We encourage those with stories of progressive treatments to share them with others. Please contact us to share your story.

©2010 John S. Howland Family. All rights reserved.
Website design, development, and maintenance by Bacon Graphics.